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Pediatric Neuroblastoma

The Parent/Family Perspective of Navigating Treatment Options for Neuroblastoma

Now Available On Demand

Parents, caregivers, and families face multiple challenges with a diagnosis of pediatric neuroblastoma. The two sessions below feature a multidisciplinary panel comprised of a pediatric medical oncologist, oncology nurse practitioner, patient-advocate representative, and parent of a child diagnosed with neuroblastoma. The panel will discuss key concerns surrounding treatment options, demands of treatment, coordination of care, and family support. In addition, family/parent video interviews will provide insights and different perspectives during key periods in the care of a child with neuroblastoma. The virtual education will include tips for working with the health care team, advocating for treatment, and helpful strategies that other families have employed to address day-to-day challenges.

The following sessions are available on-demand:

Session 1 - The Parent/Family Perspective of Navigating Treatment Options for Neuroblastoma
From understanding treatment options to proactive and comprehensive supportive care, effective communication with the treatment team is required for the successful administration of intensive treatment regimens. Hear from 4 parents/families about their experiences and how they advocated for their needs and goals through initial and relapsed/refractory treatment.
This expert-led virtual education session will:

  • Provide real-world family perspectives on treatment decision-making
  • Offer tips for parents and caregivers on how to work effectively with the health care team
  • Share helpful strategies that other families have employed to address the day-to-day challenges of caring for a child with neuroblastoma

Session 2 - Review of Neuroblastoma Treatment and Management
Join a multidisciplinary panel of experts and patient advocates led by Dr. Shakeel Modak as they discuss emerging treatment options, including anti-GD2 agents, for high-risk relapsed/refractory pediatric neuroblastoma. Panelists will also review the determination of risk status, patient-selection criteria, and strategies to address adverse effects throughout the course of treatment.
This expert led virtual education session will:

  • Summarize the mechanisms of action of emerging agents for relapsed/refractory high-risk neuroblastoma
  • Describe strategies to manage challenges of administration and treatment-related adverse effects in patients undergoing treatment for relapsed/refractory high-risk neuroblastoma
 

Speakers

Shakeel Modak, MD

Acting Chief, Neuroblastoma Service Attending, Pediatrics Memorial Sloan Kettering Cancer Center

Donna Ludwinski

Director of Research Advocacy, Solving Kids’ Cancer

Rachel Glincher, RN, MSN, CPNP-AC, CPHON

Pediatric Nurse Practitioner, Memorial Sloan Kettering Cancer Center

Gregory Sizikov

Caregiver